HS Online is a unique resource developed in collaboration with leading doctors in the field and people living with hidradenitis suppurativa, also known as HS. HS Online is designed to offer people with HS helpful information and support.
Studies have reported a global prevalence of 1% in the general population, yet there has been limited information available about this recurrent, and often painful, inflammatory disease.1,2,3
Here, you’ll be able to learn about hidradenitis suppurativa, hear different points of view from HS experts and patients, connect with local support groups and much more.
Tara Burton has been living with hidradenitis suppurativa since the age of 14, but was not diagnosed until the age of 24. In 2006, Tara lost her job as an Accounts Assistant due to ill health. This unfortunate event, and the lack of existing knowledge and support available for the HS community, inspired her to help develop the British Association for Hidradenitis Suppurativa (BAHS) in 2007, a key patient advocacy group in the United Kingdom. Two years later, this became the first registered United Kingdom charity dedicated to HS. Now known as the Hidradenitis Suppurativa Trust (HST), the charity is run by Tara and 6 other trustees who volunteer their time to the organisation. More information on HS can be found at http://www.hstrust.org and http://www.nhs.uk/conditions/hidradenitis-suppurativa.
Neel has been living with HS since 2006, but only received a diagnosis six years ago when she was referred to the dermatology ward at Roskilde Hospital. She has already been active in building a community in Denmark and has started a Facebook group for HS patients in her country, as well as collaborating with others in the hopes of establishing a local patient organization.
Over the last three decades, Dr. Jemec has been at the forefront of HS research, with dozens of publications contributing to the definition and management of the disease. Dr. Jemec is a professor and founding chairman of the Department of Dermatology at the University of Copenhagen Roskilde Hospital.
A chief architect of the Hidradenitis Suppurativa Foundation in the US (and its former president) and the active president of the European HS Foundation, Dr. Zouboulis has been studying HS for more than 25 years. He was the chair of the steering committee for the German Guidelines of HS Treatment published in 2012 and, together with Dr. Jemec, coordinated the preparation of the European Guidelines of HS treatment (in press). A professor with more than 500 publications (h-index 53), Dr. Zouboulis is currently chair of the Departments of Dermatology, Venereology, Allergology and Immunology at Dessau Medical Center, Dessau, Germany.
- Revuz, J., 11 Chaussee de al Muette, 75016 Paris, France email@example.com. Eur Acad of Dermatology and Venereology; 23.9 (Sep 2009): 985-998
- Jemec G. Hidradenitis Suppurativa. N Engl J Med. 2012; 366:158-64.
- Zouboulis CC, Tsatsou F (2012) Disorders of the apocrine sweat glands. In: Goldsmith LA, Katz SI, Gilchrest BA, Paller AS, Leffell DJ, Wolff K (eds) Fitzpatrick’s Dermatology in General Medicine. 8th ed, McGraw Hill, New York Chicago, pp 947-959.